Did you know that the month of September was officially declared by our United States President Barack Obama to be officially ‘Childhood Cancer Awareness Month’? – Official Presidential Proclamation here We were blessed to attend a White House Tour with over 200 other families that were affected by Childhood Cancer this month, and receive an official Proclamation.
I posted as much as I could to raise more awareness this month about Childhood Cancer on Ava’s FB page. We also did the Whipping Childhood Cancer challenge. I challenged 46 of our my friends via Facebook, and only my husband and wonderful cousin accepted the challenge for the pie in the face all for childhood cancer. About 7 others said they would donate – hope they did. The other 30+ friends I never heard from, which they either did not see the post or really don’t give a damn, which makes me sad as kids are dying every day because of Cancer – it’s the NUMBER 1 KILLER OF CHILDREN!!!! My husband also challenged his friends, and no one responded sadly :(. I find as the years pass since Ava was diagnosed in 2011, that less and fewer people seem to care or want to forget. Well we can’t forget, as Ava will have long-term side effects because of the 2.5 years of chemo injected into her little body. She will never be a normal child like your healthy children are. Thats the plain truth and fact folks.
So yes I wish I could have done more this month to raise more awareness, but its hard when people start not to give a damn. Our dear friend Tattoo Tom with the Stillbrave foundation – he has a tattoo on his arm that reads ‘Talk is BullShit’ – all because 10 year old Gabriella Miller who passed away October 26 last year from brain cancer stated the true fact that ‘talk is bullshit!’ when it comes to childhood cancer. “STOP TALKING AND START DOING” her words – Please watch this video of this little girl who is now in Heaven sharing her message.
So true, so many of you talk the talk but its all crap. You need to do something to make a difference. Reach out to your friends that are going through this or have gone through this with their child and see how they are doing, donate to a childhood cancer foundation every year, and become involved so that our kids can stop dying with this terrible disease and hopefully one day our own Government will give more than 4% of funding for childhood research – such a pathetic percentage.
So while the #whippingchildhoodcancer challenge was a failure, I am also beginning to wonder about our upcoming LLS TEAM AVA walk. We have only one friend signed up to walk with us this year, when previous years while Ava was in treatment we had 20+ team members. Again I begin to wonder do people think because Ava is done treatment that its OK? Well it’s not OK, it will never be OK.
Also in the news this month an NFL player’s 4 year old daughter was diagnosed with childhood cancer. She had a successful surgery with the tumor being removed, but yet she will have a long journey ahead of her. While I am not happy about another child getting diagnosed with cancer, I am glad it’s getting the media coverage it so desperately deserves so people wake up and see that CHILDHOOD CANCER IS NOT RARE!!! But it should not be getting media coverage because of a famous sports figure, it should be getting coverage because our kids our getting diagnosed daily and dying with this disease, and our own powerful government does not give a damn about funding to help find cures to save these kids.
So with all that said, yes September was and will always be the month for Childhood Cancer Awareness. So wake up people – as a sweet little girl who lost her life all to soon said – Talk is Bullshit.